Tuesday, November 5, 2013
T-8 days and Counting
Friday, October 18, 2013
One year latter......
Friday, October 11, 2013
Pinkwashing and inappropiate facebook posts
Monday, October 7, 2013
Pinktober
Friday, October 4, 2013
Shame on you ABC News!
Breast Cancer Awareness: Stay Positive 2.0
Monday, September 30, 2013
National Hereditary Breast and Ovarian Cancer Week
Thursday, September 26, 2013
Did you know today is national Mesothelioma Cancer day?
Friday, September 20, 2013
Happy Pills and NED
Friday, September 6, 2013
Rainbows in the Sky....
There was a lot that happened in August. I spoke to my oncologist and she suggested that I take Lexapro for the mood swings that I have been experiencing. Things have been much better at home. I have notice a difference in my feelings towards Richie are for the better now. I am no longer thinking about the end of my marriage but at the fact of making it stronger.
I have had very few side effects on the medicine. I noticed that if I take it at night it seems to help most.
My joint pain has been slowing getting better now gone yet but better.
I have scheduled my surgery date for November 13th. I cannot wait for that to happen maybe then I will finally feel like this nightmare is almost over. It will be a longer hospital stay but in the end it is the right decision for me.
There is more to come but I need to get my thoughts in order just wanted to check in. Have a great weekend!
Monday, August 5, 2013
Letrozole Side Effects
I knew after being put into chemopause and then having a hysterectomy I would have some side effects. I don’t think I was prepared for all the side effects I would have with Letrozole.
I can be okay with the hot flashes although some nights it is really bad I am okay with them I know that this is temporary.
The one that is really is hurting me literally is the joint pain. My hands hurt so much I went to the oncologist and told her what was going on. I am taking real pain the hands cramp at night and during the day they ache. I am taking ibuprofen and some vitamins. So far it has somewhat helped but not much. On my appointment with her on the 22nd it will be discussed.
The other not so nice side effect of Chemo/cancer/early menopause is the lack of libido there is none. Forget lack nonexistent. This is something that will be discussed in the survivor clinic later in the month. The only problem there is it my actual libido or is it because my marriage is falling apart? That is for a whole other post though.
August Appointments
Monday, July 1, 2013
All is okay!
Thursday, June 13, 2013
I love my breast surgeon!
Wednesday, June 12, 2013
Hanging halfway off the mountian...
So more to come glad that I have my prescription for the sleeping pills looks like I will need it.
Monday, June 10, 2013
I'm Free....sort of......
Friday, June 7, 2013
I'm finally done!
Thursday, May 16, 2013
Halfway through Radiation
Tuesday, May 14, 2013
Angelina Jolie…My Thoughts
Wednesday, April 24, 2013
Tuesday, March 19, 2013
Ramblings
I finally took a shower today drain free. It felt good but I am still in pain. I don't feel like myself at all.
I feel like I am in this weird and unusual place. I should be happy my husband has been great and still wants me even though we can't yet. I have not thought about sex since I was diagnosed with cancer. I want to feel normal again but I know that it will be a long time before that happens.
Thursday, March 14, 2013
The Surgery and aftermath
We called the doctors office and they told me to come into the emergency room. Erica and Aunt Ellen took me in and I was there for a long time. Richie came and they took Tyler with them and he stayed with me.
Everything with the surgery looked good. They did a CT Scan and I had signs of pneumonia. So I was admitted to the hospital. I was there until Saturday. I was finally let go after being fever free for a couple of days. I am still on the antibiotics but doing much better.
I still have some pain from the surgery and one drain is still in. My breast surgeon was amazing I have almost no bruising and the scar looks really good.
On the 21st I get my port out finally Yeah it is starting not to work. One thing I would never recommend is the port in the arm way to much can go wrong.
I am starting to heal though and feeling better and that is all that counts.
Sunday, February 24, 2013
Pre Surgery
We told Tyler yesterday that I will be going in for surgery on Wednesday and he will stay at Erica's during this time. Richie is going to stay with me in the hospital overnight. I am starting to get a little nervous and a little sad. I am guessing that is to be expected.
Tuesday, February 19, 2013
8 days to go....
Friday, February 15, 2013
Not Sleeping.....
Then this morning as I was leaving to go to work I fractured my ankle. Yes you read that right 12 days before surgery I have fractured my ankle and will see the orthopedic surgeon this afternoon. I am hoping that they do not put me in a cast. Please do not put me in a cast!
Tuesday, February 12, 2013
Moving on to Duke
Friday, February 8, 2013
Looking Back...
Wednesday, February 6, 2013
Taxol # 4
In just 3 short weeks I will be having my mastectomy and hysterectomy. That in it self seems far away and yet very close to happening.
It is going to be a busy next three weeks. Hopefully this last Taxol will be nice to me as the others were and I am just tired. I am so glad I did not get sick at all while on treatment this was one of my biggest fears. I am off for now almost time to start my Taxol! :)
Monday, February 4, 2013
Next Steps....
I have also been thinking a lot of my mother. I think her doctor was an idiot and if he would have done some testing on her when she first was sick with the cough maybe she would have been with us longer. For that I am just plain angry. But this is one of the reasons why I keep going to the long term.
When my mother was 32 she was diagnosed with stage 3 ovarian cancer. Her mother had passed away from it when she was 43 also. I don't think my mother ever thought she would get cancer again (if she did she never told me) she was very good about always going back to the gynecologist for her checkups and getting her CA-125 checked. She wouldn't even switch doctors because he was the one that she felt saved her. She was also very on top of me always going to get my annual exam and when it came out that woman who were on the pill had a less of a chance of getting ovarian cancer she came home and told me to go on the pill.
Again breast cancer was the furthest thing on our minds. I have been thinking a lot of my mom during this whole thing. I feel like I should celebrate the ending of Chemo on Wednesday so way but I am not sure, what am I really celebrating the end of Chemo means that I get to go onto the next step surgery.
Steps I need to remember baby steps...with each baby step it will bring me closer to the main goal NED.
Sunday, February 3, 2013
Sunday Morning Ramblings......
After the last treatment my hands swelled up and were hurting. No reason why they think maybe one of the inactive ingredients may have changed. So they needed to put me back on steroids. My feet are hurting too and have peeled again.
So I was feeling pretty down. Last night I finally got a good night sleep. Amazing what that will do for you.
Today is my wedding anniversary. Eight years married and fifteen years together. We have been through it all.
Wednesday is my last chemo treatment at the cancer center before I transfer my care over to Duke. This week Duke hosted a conference on the fact that those who had a breast navigator helped during their treatments. I truly believe that. She fought the insurance company to get the simple drugs that I needed approved and helped when I felt I just had some weird questions.
I plan on asking Duke to also be put in touch with their navigator. I like having that connection.
Lately though what has been on my mind is the after care. What happens when I am all done with treatments. I don't just want to be sent on my way with a see you in 6 months. I have been searching the internet for after care put there doesn't seem to be much. I am hoping that changes.
Friday, February 1, 2013
On Step Closer
I am starting to get everything together for the surgery. It keeps my mind busy. I wrote out a list of all the doctors and the numbers and I will keep that on the fridge and by my bed. I am also getting my list of supplies together.
When I came home last night Richie said to me I don't know how you do this. I have appointments in the morning then worked until 9 then came home.
I do it for him and Tyler nothing is going to stop me from kicking this cancers ass and doing everything in my power to prevent it from coming back. I am no longer focused on getting through my last treatment but now on survivorship.
So of course I am turning o the internet’s!
I have begun to really use twitter to see what is out there and trying to get all my facts together. I am wondering if it would be better to do chemo again before radiation. To give myself better survival rates? I have lots of questions already for the oncologist when I switch everything over to Duke.
I have contacted army of woman and am joining one of their study groups and I have also signed up for the Health of Woman Study.
If I can help one person it makes all this worth it. My mind is full of lots today and I feel like this post is all over the place. Sorry for that.
Thursday, January 24, 2013
Chemo # 7
When Richie drove me we also had Tyler since he is tracked out of school. We just told him I was going to the doctor. Even though he wanted to come in we said no. It really is not a place for him and it is being selfish on my part but I an trying to keep as much of this away from him as possible.
Of course yesterday's blood draw showed that my HGB was very low I am happy that they decided to do my treatment anyway but I am getting a blood transfusion today.
I am actually sitting in the hospital now getting the premeds. They joys of being a cancer patient.
I don't have that much more to say today.
Tuesday, January 22, 2013
Health Insurance
Fast forward to 2010 when I had no insurance and was pregnant..I knew that I would have to have a c-section since I had on with Tyler. I was starting a new job and in NC a pregnancy was considered a pre existing cause. Okay what do I do now? So I went down to DSS my very first experience. It was okay but not very pleasant. They told me they could give me insurance through Medicaid and would also cover Tyler. I was very grateful to have insurance again but now it was time to find a doctor who would accept Medicaid for me. I did find one eventually and was able to be seen by the doctor. My pregnancy at that point turned into a miscarriage and I stop the Medicaid for me but for Tyler he would be covered until I got health insurance on my own. Since I had just started a new job I knew that would not be much longer.
Insurance has changed over the years and I was not that knowledgeable at that point I picked an insurance company and instead of co-pay I now had a 20% coinsurance and a deductible. I had no idea what this meant.
Fast forward again to 2012 I am very grateful that I had insurance when I found my lump. But it also meant that I would have to pay out a lot in co-pays. Thousands of dollars. I will be paying for a very long time. I am trying to work with the many different labs and doctors for the co-pay’s.
Now in 2013 I am much for insurance savvy (not really) My Company offered a high deductible plan with a $5,000 deductible for the family. Okay this would be good for us. Knowing already that I would reach that with my first chemotherapy treatment, the cancer center where I am currently at has given me financial aid for anything that my insurance does not cover.
That being said it took me 17 days! Yes only 17 days to reach my deductible for the year. I am so happy about this and it has been a great relief for me. Every day I thank God I have insurance. I am also very grateful for any financial aid I have received so far. I still have a very long road ahead of me and there will be many doctor appointments over the next five years but it will be all worth it in the end. I am here.
Saturday, January 12, 2013
Surgery Booked
The second appointment was with the breast surgeon Dr. Greenup . We went over the surgery and I signed the consult papers for February 27th. So it is all set. They will do the left breast mastectomy and the hysterectomy on that day and should be in surgery for about 4 hours so it will be a long day. I will only be in the hospital overnight. I am happy for that. At least I get to come home and recover here. I will have drains in me for about 7 to 10 days. I will be out of work for about 6 weeks.
The third appointment was with the plastic surgeon Dr. Holienbeck. He said I can have the TRAM Flap surgery. I am happy about that. Yes it will be a longer recovery time about 5 days in the hospital and then about 6 weeks at home. The reconstruction will not be until about 6 months after the end of radiation so I am looking at end of October early November for the reconstruction. That will be about a 6 month time frame from start to finish.
So it looks like this whole breast cancer thing will last about a year and a half time in total. It is going to be a long road to recovery but it will be all worth it in the end.
Two more Chemotherapy treatments and then my preop stuff at Duke. February will be a very busy month for me between appointments and work but I am ready.
Thursday, January 10, 2013
Chemo # 6
Tyler has been having problems in school this week. He asked me a couple of times over the weekend if I was sick and we kind of blew him off but I think it is time to tell him. He has also been asking when my hair will grow back long. I spoke to Richie about it today and we are going to come up with a plan to tell him. Was not looking forward to this day but I knew it had to happen soon. There is only so much you can hide from kids.
I have been learning new things on Twitter and Facebook this week too regarding my cancer and how to make sure I have all my health records when I leave the doctor’s office. Something I never thought of even though I have all my labs from the Cancer Center. I never got my medical records from my first breast surgeon so I am picking up those today. I do keep everything though in a big 3 ring binder. I also need to get back my disks from Duke. So I will ask for that tomorrow.
Sunday, January 6, 2013
Getting Nervous
It will be a busy but productive week.