The drains came out for almost two weeks until I once again stopped peeing and was put back in the hospital last week and had to get the drains put back in.
I have gone from being okay with this to being very angry. I thought I was at least getting somewhere with having the drains removed and having some hope. Some sort of a normal life. I figured I could go out and meet new people, go on a date maybe? It is not fair can i get some sort of a break? Have some sort of a normal life?
After getting out of the hospital I went in for chemo and had to get a blood transfusion too. Plus some potassium. It made for a very long day.
On Friday I had an appointment with Dr Lipkin (urologist) he took out the three stents I had in my bladder. He is hoping that it will help me urinate better. It was very weird seeing a camera inside my bladder and taking out the stents. This though has helped with some of my pain levels.
I still need to get all my medical records together so I can send them to John Hopkins and see what the specialist has to say regarding my fibrosis.
I also had a CT Scan of the upper body and am waiting for the results on that.
Tyler came home from school with a cold and of course I have now caught that. I am trying to decide what to do regarding chemo tomorrow. I am nervous about skipping chemo but don't know if I can handle it either. Decisions decisions.
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