Good news.

On Monday my Doctor drew labs to test my tumor markers.

Tumor marker results in all 3 are normal 

CA125 -10

CEA - 1.0

CA 27.29 - 28

In October my CA125 was 89 

Chemo is working!!! I am over the mood excited that the chemotherapy is working  and this put me in such a good mood on Tuesdsy. Although it was short lived. 

I was in my room doing things and got the tube caught on my bed and ripped it out. So I was off to the emergency room and an overnight stay at Duke. I didn't pull out the track so that was a good thing. 

I have my scans on March 27th so that will confirm everything. 

My appointment with the rumortologist was cancelled because of the snow so that will happen on March 11th. I am still waiting for John Hopkins to call me and let me know if they will take my case for the retropertinal fibrosis. I am really hoping they do. I would like to start to get this under control now that the cancer is under control. 

On Monday I get my nipple tattoo from Dr Hollenbeck I am also hoping that he will be willing to fix the left boob. Since the cancer is somewhat under control I can start to do things that will help with my quality of life. I finally feel like I am in a place where I will live for a very long time. I have lots to look forward too and live for. 

Ever feel like a broken record

I do! I swear my life revolves around me getting chemo once a week and dealing with these damn nephrostomy tubes. The amount of times I have pulled them out is rediculious.  Last night I pulled it again, it was just replaced on Thursday. It hasn't hurt me all day but I am pretty sure it is pulled out again since I don't think it is draining properly. 

The cancer does not give me as much problems as the tubes give me. I have an appointment on Thursday with the Duke rumortologist and have sent everything off to John Hopkins so hopefully they will take my case. I just really want to get the tubes out before I start wearing shorts. Not sure how I can do that with the tubes. It will be a very long summer in skirts or dresses. 

Today I have chemo and labs.  They are going to test my tumor markers. The only one that was tested in October was my CA125 and that was high so I am praying that the numbers go down and the other ones are not too high. I am also hoping that I get the results tomorrow also. Not sure how long they take. More to come tomorrow. 

Chemo, tests and more hospital stays

Every week I have been doing chemo and have also been getting blood transfusions when needed. 

The drains came out for almost two weeks until I once again stopped peeing and was put back in the hospital last week and had to get the drains put back in. 

I have gone from being okay with this to being very angry. I thought I was at least getting somewhere with having the drains removed and having some hope. Some sort of a normal life. I figured I could go out and meet new people, go on a date maybe? It is not fair can i get some sort of a break? Have some sort of a normal life? 

After getting out of the hospital I went in for chemo and had to get a blood transfusion too. Plus some potassium. It made for a very long day. 

On Friday I had an appointment with Dr Lipkin (urologist) he took out the three stents I had in my bladder. He is hoping that it will help me urinate better. It was very weird seeing a camera inside my bladder and taking out the stents. This though has helped with some of my pain levels. 

I still need to get all my medical records together so I can send them to John Hopkins and see what the specialist has to say regarding my fibrosis. 

I also had a CT Scan of the upper body and am waiting for the results on that. 

Tyler came home from school with a cold and of course I have now caught that. I am trying to decide what to do regarding chemo tomorrow. I am nervous about skipping chemo but don't know if I can handle it either. Decisions decisions.